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Page Content

Self Management

Frequently Asked Questions

Professional Organizations


We are currently updating the links to this page .Please check back later

 

LET'S TALK LYMPHEDEMA BOOK by expert Professor Peter Mortimer

  ‘Lymphedema is a little-known illness, and this book will help sufferers and their carers cope – and who better to help write it than someone like Gemma Levine who is a sufferer herself.’  – Dame Judi Dench 


You may download this book for free by visiting and supporting Lymphatic Education and Resource Network LE&RN. Click the link below

  ‘Lymphedema is a little-known illness, and this book will help sufferers and their carers cope – and who better to help write it than someone like Gemma Levine who is a sufferer herself.’  – Dame Judi Dench 


You may download this book for free by visiting and supporting Lymphatic Education and Resource Network LE&RN. Click the link below to be redirected to their website and list of free resources.   



Download

Our Classes

Classes are generally 30-40 minutes long and are delivered as lunchtime talks suitable for the general public and clinicians alike. Please contact us to find out more.

Frequently Asked Questions

If you have a chronic swelling of a body part for more than 3 months, and your doctor has not referred you to a specialist to find out the cause, you may develop lymphedema. Lymphedema (LE) is chronic swelling (edema) caused by a buildup of fluid (lymph) that occurs when the lymphatic system is either faulty or damaged.  If you would like to receive more information, please contact us directly.

    


If you are recovering from secondary LE (caused by surgery, trauma, or venous disease), there are many life changes you can make to help manage this disease. Having a fitted, comfortable compression garment is essential! Stabilizing your weight, stretching, gentle movements, and avoiding the triggers to a flare-up are key to self-management. If you need help with finding compression garments, we strongly advise you contact a Certified Lymphedema Therapist to be professionally measured and fitted.

    


Unfortunately, most doctors only have 30 minutes training on the lymphatic system and are not aware of best practices for treating lymphedema. LE is a progressive disease that, without treatment and self-management, can lead to life-threatening infections and hospitalizations. It is vital to find the right specialist to manage this disease. Please contact us if you need help.


Professional Organizations

LE&RN

 The Lymphatic Education & Research Network (LE&RN) is an internationally recognized non-profit organization founded in 1998 to fight lymphatic diseases and lymphedema through education, research and advocacy. LERN has multiple information sheets to download, as well as an “ask the expert “panel for questions. There is also a local chapter in Hawaii. 

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LSN

Lymphedema Support Network LSN in London. This Charity has become the largest information resource for lymphedema in the UK, producing an on-going series of fact sheets, initially for patients; however, the high standard of this information has led to healthcare professionals ordering them for use in hospitals and lymphedema clinics.
Please visit their web site to discover more important educational material. 

contact

BLS

The British Lymphology Society, is a dynamic and innovative body providing a strong professional voice and support for those involved in the care and treatment of people with lymphedema and related lymphatic disorders, including lipedema. Please visit their web site for more information. 

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LTA

The Lymphedema Treatment Act (LTA) Compression garments are a medical necessity for people living with lymphedema. As of January 2024 Medicare provides insurance coverage for doctor-prescribed compression supplies..  


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CGC

We partner with Dolly Foley at Compression Garment Company who shares our passion to provide exceptional personal service to those people living with lymphedema. Dolly and team run a small local business dedicated to finding you the best possible solutions for compression.  This web site opens up many other important education links . 

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